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We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

With over 2500 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

Meet the Team

At CAUK we understand how important it is to have the right people in the right positions so we can offer the best help and support we possibly can.

Our staff, board and medical advisors are dedicated to helping & supporting our members and their families.

David White

interim CEO

David is the carer of partner with symptomatic cavernoma. He is a retired Chief Executive of a Research NGO and Research cell biologist.

Joanne "Jo" Noakes

operations manager

Jo joined CAUK in 2018 as Caverfamilies coordinator, later growing her role to include adult & peer support. Working as Operations manager she facilitates our day to day work.

Tracey Hammond

Member Support Coordinator

Tracey found CAUK after her brainstem cavernoma bled in 2008. Working at first as volunteer coordinator for the caverbuddies scheme and since joining the team as staff. 

Sian Oliphant

office manager

Sian has worked for CAUK on a part time basis since 2016, following her retirement from a role within School administration and finance

Ailsa Crowe

Online Engagement Coordinator

Ailsa worked in logistics and supply chain management until diagnosis of a symptomatic cavernoma in 2015. She now works part time for CAUK in charge of all our social media. 

Michael Nelson

IT & Website Support

Michael is the carer of a partner with a symptomatic cavernoma. He started as our volunteer website maintainer, and since joined the team to oversee all CAUK’s IT needs.

Our Board of Trustees

chair

Mark Farrar

Mark is the father of a daughter with Cavernoma. He is the retired headteacher of a large comprehensive school and CEO of a multi-academy trust of ten schools.

board member

Roxanne Dixon

Roxanne has symptomatic Cavernoma. She is a retired School teacher.

board member

Anita Rose

Anita works as a Clinical psychologist with interest in Cavernoma patients.

board member

Jane Jackson

Jane has symptomatic cavernoma. She is the Chief Financial Officer of a government Executive Agency and a Chartered Management Accountant with current responsibilities for governance including fraud and whistleblowing.

board member

Sharon Veiger

Sharon has three young children with cavernoma  and is an active member of our CaverFamilies group. She works as Operational Quality Manager for Pharmaceutical company with responsibility for ensuring product quality, safety and efficacy during import and release process.

Our Medical Advisors and Patrons

CAUK relies heavily on the advice and support of medical experts in cavernoma. Mr Kitchen, Professor Salman and Sacha Bonsor became patrons of CAUK in 2015.

rofessor Rustam Al-Shahi Salman

Prof. Rustan Al-Shahi Salman

Professor of Clinical Neurology, MRC senior clinical fellow, University of Edinburgh, honorary consultant neurologist, NHS Lothian, scientific and medical adviser for CAUK.

Mr Neil Kitchen consultant Neurosurgeon giving a lecture

Mr Neil Kitchen

Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery and Senior Medical Adviser to CAUK.

Sacha Bonsor portrait

Sacha Bonsor

Journalist and author of a book, Dipped Into Oblivion, which chronicles her experience of having a brain haemorrhage and subsequent surgery. She lives in London with her husband and three step children.